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RJ. Caregiver burdern and health promotion. Int J Nurs Stud. 2000;37:37-43.
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Grandma and Grandpa Taking Care of the Kids: Patterns of Involvement . Research brief discusses how grandparents are providing childcare; looks at careers of the grandparent, time spent, and type of care; Child Trends Research Center.
Navigating the care system: A guide for providers to help family caregivers . For professionals and consumers; information about programs and services in US health and long-term care systems; Family Caregiver Alliance.
Positive Aging Resource Center (PARC). For consumers and professionals; information and resources for older adults and caregivers, USDHHS.
Care of Mom, Taking Care of Me: Coping With A Relative's Illness and Death.
For professionals and consumers, this book describes how to care
for an ailing parent and offers comfort and advice for those who find
themselves in the role of caregivers. The Judaica Press, Inc.
National Family Caregiver Support Program: Resource Guide (2003).
For professionals, this resource guide (PDF format)
produced by the Lewin Group provides information for the Aging Network
to help agencies find information on the National Family Caregiver Support
Program. Administration on Aging. (202) 619-0724.
Guide for Families: Conversation about Long Term Care (2002).
For consumers, this booklet was prepared by the American Health
Care Association and the National Center for Assisted Living, coaches,
adults, children, other family members and friends on how to broach the
subject with older adults. It also describes early warning signs that
services eventually may be needed. American Health Care Association.
We Care (July 2001). For professionals and consumers, this
is an online resource guide to the growing number of Americans
who are caring for an older family member, adult child with disabilities,
or older friend. This Guide provides information and a range of suggestions
to make caregiving easier and more successful - whether you are the caregiver
or the person who ensures that your family member or friend receives the
best possible care from others. Administration on Aging. (202)
Caregiver Guide to Information and Resources. For consumers, this
brochure (stock# 16697) addresses concerns about finding home care
services. A free copy can be ordered from American
Association of Retired Persons. (800) 424-3410.
and Depression. For
this is a fact sheet from the Family Caregiver Alliance (FCA) offers
advice to caregivers and their families on recognizing risk factors for
depression, such as feelings of exhaustion and isolation, associated with
the demands of Caregiving. The fact sheet contains resources and reading
lists for families and healthcare providers. Family Caregiver Alliance.
(800) 445-8106. www.caregiver.org
professionals, this is a compendium
of caregiver activities within HHS on caregiving. Department
of Health and Human Services, Administration on Aging. (202) 357-3582.
Guide: Tips for Caregivers of People with Alzheimer's Disease.
For consumers, this guide, by the National Institute on Aging,
is designed for family and other caregivers of people with Alzheimer's.
National Institute on Aging. (800) 438-4380
Resources. For consumers, the estimated 1.7 million caregivers
in New York state can share tips on how to manage their time and
take better care of themselves through a newsletter published by the New
York State Coalition for the Aging (CFA). Each month, the Caregiver Assistance
News provides an idea exchange, a quick quiz and even a cartoon. New
York State Coalition for the Aging (CFA). (518) 465-0641.
Self-assessment Questionnaire Background Information. For professionals
and consumers, this Questionnaire will help caregivers analyze
their own behavior and health risks and, with their physician's help,
make decisions that will benefit both the caregiver and the patient. The
Caregiver Self-assessment Questionnaire will enable physicians to identify
and provide preventive services to an at-risk but hidden population and
improve communication and enhance the physician-family caregiver health
partnership. American Medical Association.
With Physical Aggression in Caregiving: Physical and Non-Physical Interventions.
For professionals, this video and workbook training package teaches
the staff the procedures to help avoid and, if necessary, contain aggressive
behaviors while preserving the dignity of the resident. The videos teach
both nonphysical and physical interventions, along with the concept "A
Unified Staff Response System," that can bring prompt staff support
to deal safely with harmful situations. Each of the 3 videos (20-25 minutes
each) shows detailed demonstrations. The companion workbook includes reproducible
Care: A Six Step Guide to Balancing Work and Family. For professionals
and consumers, this booklet is designed for employees and employers
struggling to balance work and family. Bringing Elder Care Home Publishing.
of Care. For professionals and consumers, this is a comprehensive,
Internet-based community resource for older adults and people with
disabilities, including their caregivers and service providers. The easy-to-use
website provides an extensive directory to put people in touch with the
right services at the right time. It also offers vital information about
assistive devices, caregiving, day-to-day challenges and diseases, as
well as daily news from around the world concerning aging and disabilities.
This unique, one-stop information tool enables you to keep personal records,
create an online family meeting place, and communicate directly with elected
officials to make your voice heard in the legislative halls. Network Of
Management & Restorative Dining for Older Adults: Practical Interventions
for Caregivers (January 2001). For professionals, in
this book, Chapters 1-3 explore the role of nutrition as
it relates to the needs of the older adult, nutrition assessment, and
the eating environment. Chapters 4-7 focus on eating skills, rehabilitation,
the effects of impaired swallowing, mobility, and cognitive and perceptual
deficits impacting nutrition status.
Chapters 8-10 discuss the latest approaches to nutrition management
of acute and chronic conditions, including enteral and parenteral nutrition
American Dietetic Association. (800) 877-1600 ext. 5000
for Caregivers. For professionals, this guide can help caregivers
find a broad array of resources, books, publications, web sites and organizations
to help them with their tasks. The guide was produced by MetLife's Mature
Market Institute and the National Alliance for Caregiving. It will be
distributed through area agencies on aging and Title VI Native American
National Association of
Area Agencies on Aging. (202) 296-8130.
What Caregivers Need Most (July 2001). For consumers, this Fact
Sheet from the Administration on Aging (AoA) is implementing a program
that will soon begin to offer respite and other services to some caregivers
who so desperately need a break. Administration on Aging.
Caregiver's Handbook. For consumers, this book
offers practical approaches to common caregiver problems. Staying healthy,
avoiding depression, remaining active, making friends, enjoying pleasurable
activities are an essential part of any human life, including those of
caregivers. Serving as the primary caregiver for an ill loved one should
not make life meaningless.
(716) 636-7531 http://wings.buffalo.edu/~drstall/
We Care: Helping Caregivers Find Support. For professionals, this
booklet is a resource to direct caregivers to useful sources of
information, as well as stimulate additional programming to help the work
of caregivers. National Council on the Aging. (202) 479-1200.
Caregiver Alliance <www.caregiver.org>
Family Caregiver Support Program - Caregiving Resources for the Aging
Network, Administration on Aging <www.aoa.gov/carenetwork/>
for Aging – The Caregiver Sourcebook