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SL, Kiely DK, Hamel MB. Dying with advanced dementia in the nursing home.
Arch Intern Med. 2004;164:321-326.
AM, Gordon M, Markwell H, Alibhai SMH. Ethical issues in end-of-life geriatric
care: the approach of three monotheistic religions-Judaism, Catholicism,
and Islam. J Am Geriatr Soc. 2003;51:1149-115
KS. More than a failing heart. Gerontologist. 2003;43:285-286.
The way we die: listening to the terminally ill. Gerontologist.
PD, Zimmerman S, Hanson L, Mitchell M, Riedel-Leo C, Custis-Buie V. End-of-life
care in assisted living and related residential care settings: comparison
with nursing homes. J Am Geriatr Soc. 2003;51:1587-1594.
JM, Clarridge BR, Casey V, Welch LC, Wetle T, Shield R, Mor V. Family
perspectives on end-of-life care at the last place of care. JAMA.
End-of-life decisions, part II. Gerontologist. 2003;43:285-288.
2002 and earlier
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the frail elderly: the perspective of a hospice nurse. J Long Term
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Care of the Dying Series (2003). For professionals, this 4-tape
video series provides information on learning about dying, death,
the final stage of growth, making decisions and plans, comfort measures
at the end of life and helping the patient and family to live with terminal
illness. University of Maryland School of Medicine. (800) 328-7450. http://www.videopress.org/
Partnerships to Improve End-of-Life Care. For professionals
and consumers, founded by the Robert Wood Johnson Foundation, the program
works to promote policy changes and support for high-quality, comprehensive,
end-of-life care. There are links to about 15 states with coalitions participating
in the program. Robert Wood Johnson Foundation, National Program Office.
(816) 842-7110. http://www.midbio.org
Conversation- Resources for the Aging Network. For professionals
and consumers, sponsored by a grant from the Archstone Foundation, the
Hawaii Executive Office on Aging project works to integrate end-of-life
issues into the Aging Network both in Hawaii and nationally. Our goal
is that end-of-life services become a part of the continuum of care and
that people's final days and weeks are not a time of crisis for clients,
their families, or service providers. The project developed a Resource
Kit and Resources for the Aging Network. Topics include: How to Make a
Hospice Referral; The Problem of Pain and Suffering; Starting the Conversation;
and Talking about Death Across Cultures. Contact: Jeannette Koijane. (808)
Care of Mom, Taking Care of Me: Coping With A Relative's Illness and Death.
For professionals and consumers, this book describes how to care
for an ailing parent and offers comfort and advice for those who find
themselves in the role of caregivers. The Judaica Press, Inc.
and Palliative Care.
consumers, this on-line article explores some key clinical and
psychological issues such as how to communicate with a dying patient
and how their concerns may best be met. Pain (and the fear of pain) often
troubles patients with a terminal illness. The article dispels the various
myths around this issue and explains the World Health Organization Three
Step Ladder approach to pain medication. Other issues dealt with include
anorexia & cachexia which can be especially distressing to the
families of the dying nausea, delirium, and other symptoms which
may emerge as life draws to an end. Health and Age, Novartis Foundation
Resource Guide for Palliative Care (1999). For
professionals (Dietitians and health care professionals who work in end-of-life
care), this working manual addresses nutrition-related issues for
people facing the last stages of life, and their families. The authors
explain that they wish this manual to assist health care professionals
with decision-making relating to patient care, as well as provide practical
and easily understood nutrition information for patients and families.
It is presented as a 3-ring binder which includes an ADA position paper,
issues in feeding the terminally ill patient, a glossary of terms used,
and a bibliography of approximately 50 references as well as the collection
of practical teaching sheets with nutrition-related advice and simple
Nutrition Resource Group.
Our Own Terms, Moyers On Dying in America. For professionals
and consumers, in this video series, veteran PBS journalist Bill
Moyers reports on the growing movement in America to improve care for
people who are dying. Using interviews and research from across the country,
each program describes the intimate experiences of patients, families,
and caregivers as they struggle to infuse life's ultimate rite of passage
with compassion and comfort. The 4 videos are: Living with Dying, A Different
Kind of Care, A Death of One's Own, and A Time to Change.
Films for the Humanities & Sciences. www.films.org