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End
of Life Issues
Research
and Reports
2004
Mitchell
SL, Kiely DK, Hamel MB. Dying with advanced dementia in the nursing home.
Arch Intern Med. 2004;164:321-326.
2003
Clarfield
AM, Gordon M, Markwell H, Alibhai SMH. Ethical issues in end-of-life geriatric
care: the approach of three monotheistic religions-Judaism, Catholicism,
and Islam. J Am Geriatr Soc. 2003;51:1149-115
Feldt
KS. More than a failing heart. Gerontologist. 2003;43:285-286.
Micco G.
The way we die: listening to the terminally ill. Gerontologist.
2003;43:286-288.
Sloane
PD, Zimmerman S, Hanson L, Mitchell M, Riedel-Leo C, Custis-Buie V. End-of-life
care in assisted living and related residential care settings: comparison
with nursing homes. J Am Geriatr Soc. 2003;51:1587-1594.
Teno
JM, Clarridge BR, Casey V, Welch LC, Wetle T, Shield R, Mor V. Family
perspectives on end-of-life care at the last place of care. JAMA.
2004;291:88-193.
Yahnke RE.
End-of-life decisions, part II. Gerontologist. 2003;43:285-288.
2002 and earlier
Abrams
RC. Physician-assisted suicide and euthanasia's impact on the frail elderly:
Something to think about. J Long Term Home Health Care. 1998;17(3):19-27.
Athas
B. Palliative care and nutrition intervention. J Nutr Elder. 2001;20(4):53-60.
DiCicco-Bloom B. Physician-assisted suicide and euthanasia's impact on
the frail elderly: the perspective of a hospice nurse. J Long Term
Home Health Care. 1998;17(3):42-50.
Grey
J. Ethical issues in palliative care: clinical applications-part II. Top
Clin Nutr. 2000;15:7-11.
Hendin
H. Suicide, assisted suicide, and medical illness. J Clin Psychiatry.
1999;60(suppl 2):46-50.
Kaufman
SR. Intensive care, old age, and the problem of death in America. Gerontologist.
1998;38:715-725.
Looney
ED. Ethical issues in pallative care: clinical applications-part I. Top
Clin Nutr. 2000;15:4-6.
MacDonald
WL. The differences between Blacks' and Whites' attitudes toward voluntary
euthanasia. J Scientific Study Religion. 1998;37:411-426.
Martindale B. On ageing, dying, death and eternal life. Psychoanalytic
Psychotherapy. 1998;12:259-270.
Position
of the American Dietetic Association: Ethical and legal issues in nutrition,
hydration, and feeding. J Am Diet Assoc. 2002;102:716-726.
Rosenbloom
CA, Whittington FJ. The effects of bereavement on eating behaviors and
nutrient intakes in elderly widowed persons. J Gerontol. 1993;48:S223-S229.
Ross
HM. Jewish tradition in death and dying. Medsurg Nurs. 1998;7:275-279.
Sullivan
M, Ormel J, Kempen GIJM, Tymstra TJ. Beliefs concerning death, dying,
and hastening death among older, functionally impaired Dutch adults: a
one-year longitudinal study. J Am Geriatr Soc. 1998;46:1251-1257.
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Resources
2003
Care of the Dying Series (2003). For professionals, this 4-tape
video series provides information on learning about dying, death,
the final stage of growth, making decisions and plans, comfort measures
at the end of life and helping the patient and family to live with terminal
illness. University of Maryland School of Medicine. (800) 328-7450. http://www.videopress.org/
2002
and earlier
Community-State
Partnerships to Improve End-of-Life Care. For professionals
and consumers, founded by the Robert Wood Johnson Foundation, the program
works to promote policy changes and support for high-quality, comprehensive,
end-of-life care. There are links to about 15 states with coalitions participating
in the program. Robert Wood Johnson Foundation, National Program Office.
(816) 842-7110. http://www.midbio.org
Compassionate
Conversation- Resources for the Aging Network. For professionals
and consumers, sponsored by a grant from the Archstone Foundation, the
Hawaii Executive Office on Aging project works to integrate end-of-life
issues into the Aging Network both in Hawaii and nationally. Our goal
is that end-of-life services become a part of the continuum of care and
that people's final days and weeks are not a time of crisis for clients,
their families, or service providers. The project developed a Resource
Kit and Resources for the Aging Network. Topics include: How to Make a
Hospice Referral; The Problem of Pain and Suffering; Starting the Conversation;
and Talking about Death Across Cultures. Contact: Jeannette Koijane. (808)
586-7305. jgkoijan@mail.health.state.hi.us
Taking
Care of Mom, Taking Care of Me: Coping With A Relative's Illness and Death.
For professionals and consumers, this book describes how to care
for an ailing parent and offers comfort and advice for those who find
themselves in the role of caregivers. The Judaica Press, Inc.
(800) 972-6201.
Hospice
and Palliative Care.
For
consumers, this on-line article explores some key clinical and
psychological issues such as how to communicate with a dying patient
and how their concerns may best be met. Pain (and the fear of pain) often
troubles patients with a terminal illness. The article dispels the various
myths around this issue and explains the World Health Organization Three
Step Ladder approach to pain medication. Other issues dealt with include
anorexia & cachexia which can be especially distressing to the
families of the dying nausea, delirium, and other symptoms which
may emerge as life draws to an end. Health and Age, Novartis Foundation
for Gerontology.
Nutrition
Resource Guide for Palliative Care (1999). For
professionals (Dietitians and health care professionals who work in end-of-life
care), this working manual addresses nutrition-related issues for
people facing the last stages of life, and their families. The authors
explain that they wish this manual to assist health care professionals
with decision-making relating to patient care, as well as provide practical
and easily understood nutrition information for patients and families.
It is presented as a 3-ring binder which includes an ADA position paper,
issues in feeding the terminally ill patient, a glossary of terms used,
and a bibliography of approximately 50 references as well as the collection
of practical teaching sheets with nutrition-related advice and simple
recipes.
Nutrition Resource Group.
On
Our Own Terms, Moyers On Dying in America. For professionals
and consumers, in this video series, veteran PBS journalist Bill
Moyers reports on the growing movement in America to improve care for
people who are dying. Using interviews and research from across the country,
each program describes the intimate experiences of patients, families,
and caregivers as they struggle to infuse life's ultimate rite of passage
with compassion and comfort. The 4 videos are: Living with Dying, A Different
Kind of Care, A Death of One's Own, and A Time to Change.
Films for the Humanities & Sciences. www.films.org
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Last Updated:
07/16/2004
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